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Useful resources

Angioödem-Schwellungskalender

The Swelling Chart helps keep everything under control

Unclear swelling: The Swelling Chart can help

Keeping an accurate record in a swelling chart can help you and your doctor to better understand your angioedema. It can assist in identifying causes and triggers especially when the type of angioedema, from which you suffer, has not yet been definitively established. If the cause of your swelling attacks remains undetermined, take a few minutes the next time you experience a swelling to record exactly when the attack occurred and how it progressed. Naturally, you should wait with recording this information until after you have been able to obtain necessary medical treatment. You should also try to document, as far as you can recall, the period preceding the outbreak of the attack. For example, what did you eat or drink in the last hours before the attack? Were you excited or under stress? What were you doing prior to the outbreak of the attack? Did you suffer from a cold or other infectious disorder? What medications, if any, were you taking at or prior to the attack? Click here for an example of a useful swelling chart.

 

Swelling charts for patients with hereditary (HAE) or acquired (AAE) angioedema

The extent and severity of swellings and other symptoms in patients with bradykinin-mediated angioedema can vary considerably. A swelling chart helps you to keep track of the frequency and severity of your swelling attacks. A swelling chart will also provide important information to your doctor and assist her or him in making therapeutic decisions and in assessing the success of your treatment. A swelling chart documents the following points:

  • How frequently does swelling occur?
  • How severe is the swelling?
  • Which areas of the body are affected?
  • Do you experience other symptoms, such as abdominal pain, nausea, vomiting or diarrhoea?
  • Is there any evidence implicating potential triggers?
  • Are the swelling attacks treated? If yes, is the treatment successful? What medications were administered, when and at what dose? NOTE: If C1-INH-concentrate was used, always paste the label (with batch number and date) in your swelling chart.

Click here to download an blank swelling chart. Discuss your records regularly with your doctor.

 

Your emergency identification card: Never leave home without it!

Patients with bradykinin-mediated angioedema, such as hereditary angioedema (HAE) should be aware of the specific treatment recommendations for emergencies. It is advisable to always carry a multilingual emergency identification card that contains these treatment recommendations. This will provide important information about your diagnosis and treatment to physicians, medics and other providers assisting you in an emergency. For example, it may be life-saving in certain situations for HAE patients for those treating them to know that swelling attacks occurring in the context of HAE do NOT respond to the standard treatment for histamine-mediated angioedema.

Be sure to inform all medical providers about your illness! In some cases, patients scheduled for dental treatments or elective surgeries may require short-term prophylaxis with medication to help prevent a swelling attack.

Click here to download the form for an emergency identification card. The card must be completed by your doctor or clinic, who must also sign and and affix their seal or stamp.